Her older sister, Claudette, expressed concern over Céline’s condition,
revealing that she “doesn’t have control over her muscles.” Despite her
unwavering work ethic and desire to return to the stage, the progressive
and incurable nature of the syndrome poses significant challenges. Claudette
emphasized the limited research into this rare condition due to its rarity, affecting only one in a million cases.
Stiff person syndrome can severely impact mobility, sometimes turning sufferers into ‘human statues.’
